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Image by Kelly Sikkema

Turn Your Connection Into Impact

Most people will only learn about DESSH because someone they know shares it with them. Tell people why DESSH matters to you—share your story, set a goal, start a fundraiser, and invite others to be part of what we're building.

Every connection helps grow awareness. Awareness inspires action, and action moves DESSH forward.

Image by Samantha Borges

Peer-to-Peer Campaigns

Use the power of social media and your network to raise awareness for a rare disease near and dear to your heart. All the tools you need are right here!

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Dash 4 DESSH Event

Gather the community for our annual virtual run each fall, or host your own community awareness run anytime. We'll help!

Image by Katt Yukawa

In-Kind Requests

Local communities love to help their own. That's why we've created a few ideas to help ask your friends and neighbors for support.

THE DESSH FOUNDATION

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info@dessh.org       3 Higgins Drive   |  Vernon, NJ 07462

DESSH DeSanto-Shinawi Syndrome Corporation is recognized by the IRS as a 501(c)(3) tax-exempt public charity.

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